Wells folks it's official. It looks like this will be a year long process. **SIGH** I had managed to stay catiously optimistic about the red spot on my right foob. When I got to the PS's office yesterday I proudly showed off too her, assuring her that I had not been running a fever or feeling ill in any way. She studied me for a second, and then asked if it was ok to let another doctor look at it just to be on the safe side. She brought her partner in, and he said he was sure it was fine. He said it looked like an area that wasn't having proper lymph drainage yet, as well as thin skin. He suggested geting a SED rate test (blood draw) to check my levels to see if I had an underlying infection or condition.
After I agreed to the test, my PS started showing me everything she wanted to revise and touch up during the exchange. I hesistantly asked her when we could do the exchange. She said that normally she wants to wait 3 months after the final fill which would be late December...however given the complications with the right side and the amount of time difference between the two expanders (my left side has been fully expanded since July, and has dropped nicely and almost resembles a breast and my right side is still more rounded and sitting a bit higher) that she wanted to wait longer...like early spring/late winter. AHHHHHHHHHHHHH!!!!!!!!!
Granted, I didn't throw a fit or cry or scream. I just said "Sure whatever you think is best" like a good little patient. After hearing her explanation that while she could physcially drop the left side during surgery, but letting it dorp on it's own would achieve a more natural look in the end I calmed down. I want the best looking foobs possible dang it!
I was supposed to have my one year follow up with my neurosurgeon in the summer, but I knew I couldn't have a MRI with the TE's in because of the magnetic ports. THe nurse had originally told me to wait until I was done. When I heard it would be another 6 months, I called to let her know. She told me to make an appointment to come in to talk to him and he could order a cat scan if he needed to. I feel like my entire life revolves around doctor appointments!
I'm upset about the delay in my exchange surgery, because I really hate these expanders. I hate that I still toss and turn and struggle to find a good position when I sleep. I hate when I accidentally brush by something and I can tell how hard they are. And I hate that they're not squishy!
I'm trying not to let this get me down too much. I've got a lot more to focus on and think about (my school and job) and I'll just try to keep busy until it's time for the exchange. I don't see the PS until mid-December, so we'll see what happens then.
I keep trying to tell myself that there is still light at the end of the tunnel, but the tunnel just got a little longer.
Based on genetic risks, I decided to have a prophylactic bilateral mastectomy to manage my breast cancer risk. Enjoy reading all of the ups and downs (with a little bit of humor along the way) as I make the biggest decision of my life, which officially earns me the title of PREVIVOR
PREVIVOR: A person who is not diagnosed with cancer, but has survived the predisposition, or higher risk, of cancer due to a genetic mutation and/or strong family history. After being armed with this information, a previvor can make informed choices prior to a cancer diagnosis.
Wednesday, October 26, 2011
Monday, October 17, 2011
Procrastination
I took this work at home job so I could study between phone calls. However, here I am surfing the internet, and catching up on my blog readings. My notes are out right next to my keyboard, so does that count for something?
I happen to glance at the date on my phone and saw that it was 10/17....which means tomorrow is my six month anniversary since my original surgery. WHAT?!? Time literally has FLOWN by. I was just re-reading my earliest entires on this blog, and remembering how insurmountable this seemed at the time and how long away it seemed. Now I'm sitting here, 6 months later... not complete but pretty close!
This will be a short post..I just wanted to share my realization :) It's like Sally Fields says in Steel Magnolias "Life goes on.."
I'll be seeing the PS at the end of next week "to talk about getting my implants if everything looks ok" I feel like a kid waiting for Christmas!
I happen to glance at the date on my phone and saw that it was 10/17....which means tomorrow is my six month anniversary since my original surgery. WHAT?!? Time literally has FLOWN by. I was just re-reading my earliest entires on this blog, and remembering how insurmountable this seemed at the time and how long away it seemed. Now I'm sitting here, 6 months later... not complete but pretty close!
This will be a short post..I just wanted to share my realization :) It's like Sally Fields says in Steel Magnolias "Life goes on.."
I'll be seeing the PS at the end of next week "to talk about getting my implants if everything looks ok" I feel like a kid waiting for Christmas!
Wednesday, October 12, 2011
Setting the Record Straight Part 2
Back in January, I became increaingly frustrated with the misconceptions some people have about PBMs and the reason behind them. Whether it was out of ignorance, or plain hatefulness I got pretty tired of people dancing around the topic, talking behind my back, or making snide comments. One good thing that that post did was to let people who supported my decision come to me and tell me that they supported my decision.
I sit here at work, supposedly supposed to be studying between phone calls (I have I swear!) and I find myself distracted by something. If I get what I'm thinking out, I'm hoping I can go back to giving my A&P lab manual my full concentration.
Even before I had a PBM or efven considered it, I was a little confused as to why it was such a hot button topic. Who am I to judge someone for removing a part of their body? I mean heck, it's not like they were trying to remove a part of MY body...let them do what they want!
As I struggled to make my decision, I kept hearing that that was just what it was..MY DECISION. I know having a PBM is not for everyone and that's ok. I just know that I feel uneasy gambling with money (even though I have been known to from time to time) much less my health and ultimately my life. Actually, what completely clinched the decision for me was a bold statement I made in high school. I remember it like it was yesterday...it was my senior year and I was in American Government. We somehow got into a conversation about tanning beds (in Am. Gov't..go figure) and how unhealthy they were. One of the girls said that she would rather die young and look good. I turned around and gave her a look (in all of my 18 year old wisdom) and proclaimed that I'd rather LIVE than look good and nothing would stand in the way of me living a long, healthy life (pale skin and all).That kept ringing in my head.....the way I saw it, it either came down to two choices- Keep real breasts and have a possibly shorter life or have fake breasts and live longer. To me, it was really a no brainer.
I realize that not everyone is like that. I realize it may not be as clear cut for some people. That's fine, and I accept that....however I flat out do not understand people judging ME for it. Don't think I haven't noticed the avoidance, the numerous friends that all of a sudden deleted me from Facebook, the snide remarks when I mention my surgeries. I'm not naming any names, but I've come to the conclusion that I simply don't need those people in my life. I refuse to let it bother me anymore...it just makes me sad that it's made me realize who my real friends are.Now granted, all of this could be completely unrelated to my surgeries...however I know I haven't had any quarrels with anyone, and I just find it interesting that several situations have happened after I had surgery.
I know I've joked about the fabulous new foobs I'm getting...but trust me it's the silver lining. And that doesn't mean that I had my PBM for implants...
Like I said, I'm simply not letting it bother me anymore. Let the haters hate.....I'm going to try to look at it as I'm just giving someone else a rest from being talked about and judged!
But I can guarntee you that in 50 years when I'm old and gray but still have the boobs of a 20 year old...I will be laughing the last laugh ;)
I sit here at work, supposedly supposed to be studying between phone calls (I have I swear!) and I find myself distracted by something. If I get what I'm thinking out, I'm hoping I can go back to giving my A&P lab manual my full concentration.
Even before I had a PBM or efven considered it, I was a little confused as to why it was such a hot button topic. Who am I to judge someone for removing a part of their body? I mean heck, it's not like they were trying to remove a part of MY body...let them do what they want!
As I struggled to make my decision, I kept hearing that that was just what it was..MY DECISION. I know having a PBM is not for everyone and that's ok. I just know that I feel uneasy gambling with money (even though I have been known to from time to time) much less my health and ultimately my life. Actually, what completely clinched the decision for me was a bold statement I made in high school. I remember it like it was yesterday...it was my senior year and I was in American Government. We somehow got into a conversation about tanning beds (in Am. Gov't..go figure) and how unhealthy they were. One of the girls said that she would rather die young and look good. I turned around and gave her a look (in all of my 18 year old wisdom) and proclaimed that I'd rather LIVE than look good and nothing would stand in the way of me living a long, healthy life (pale skin and all).That kept ringing in my head.....the way I saw it, it either came down to two choices- Keep real breasts and have a possibly shorter life or have fake breasts and live longer. To me, it was really a no brainer.
I realize that not everyone is like that. I realize it may not be as clear cut for some people. That's fine, and I accept that....however I flat out do not understand people judging ME for it. Don't think I haven't noticed the avoidance, the numerous friends that all of a sudden deleted me from Facebook, the snide remarks when I mention my surgeries. I'm not naming any names, but I've come to the conclusion that I simply don't need those people in my life. I refuse to let it bother me anymore...it just makes me sad that it's made me realize who my real friends are.Now granted, all of this could be completely unrelated to my surgeries...however I know I haven't had any quarrels with anyone, and I just find it interesting that several situations have happened after I had surgery.
I know I've joked about the fabulous new foobs I'm getting...but trust me it's the silver lining. And that doesn't mean that I had my PBM for implants...
Like I said, I'm simply not letting it bother me anymore. Let the haters hate.....I'm going to try to look at it as I'm just giving someone else a rest from being talked about and judged!
But I can guarntee you that in 50 years when I'm old and gray but still have the boobs of a 20 year old...I will be laughing the last laugh ;)
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