PREVIVOR: A person who is not diagnosed with cancer, but has survived the predisposition, or higher risk, of cancer due to a genetic mutation and/or strong family history. After being armed with this information, a previvor can make informed choices prior to a cancer diagnosis.

Wednesday, August 31, 2011

Negative is the new positive

I know I've been posting more frequently lately, but seeing as how I'm in the middle of recovery from another surgery, I have a lot to talk about it! (Ok,ok, ok I know I always seem to have a lot to talk about it, but that's not what I meant). And as I've said before, I enjoy writing!

I've managed to keep on acting somewhat normal as anyone can who still has one drain and wears extremely baggy t-shirts to hide it! My PS had said that she wanted to have the drain out at the two week mark (which was today). However, my output last night was 70 ccs. AHHH!!! She wants it to fall to 20-30 ccs before she pulls it. I called her today, half hoping that she'd have pity on me and go ahead and pull it but she says she wants to wait until it falls to 30 for a few days. She started laughing and said "It's going to happen over the holiday weekend I bet" I think I laughed to keep from crying. I start school a week from today and would REALLY REALLY like to have the drain out by then. (Fingers crossed/praying/will light a candle next time I'm at church/is there a patron saint for JP drain patients? if there is I'd pray to them too!). I was all excited about my nice long weekend from work, but now I'll have to deal with this dumb drain. We are going to the Train concert at the casinos on it looks like I'll have to figure out a way to hide the drain, wear my fake boob, and look halfway decent. The things I do for good music and the Paula Deen buffet :)

Well, a few weeks ago I'd made reference to having the test done for the BRCA gene mutation. I really wanted to make sure that I wasn't in a high risk category for ovarian cancer as well. And YAY I'm NEGATIVE!!! WOOHOO!! That is fantastic..I know I still have Cowden's so I'm still part of the mutant club. But now I can keep my ovaries, so there's no rush to have kids! Because, yes if I'd been positive for BRCA and had a higher risk for ovarian cancer, I would have had my ovaries removed prophlaytically as well. Would seem almost a double standard to remove the boobs but not the ovaries. So, I definitely feel like a weight has been lifted.

So now I'll just sit back, relax, and try to enjoy this last week before school starts. I'm undecided on whether or not to go to church this Sunday with my drain. It's just so hard to find clothes AND have to worry about knocking into something or accidentally pulling it out (My doctor would probably think I purposely yanked it out). And if I have to go to school with the drain for a few days then that's what I have to do. I wonder if I can get extra credit for having the drain? Kind of like a walking A&P project?

The PS did say that she'd fill the TE 100-150ccs the same day she pulled the drain. She said that that way, it would be less of an extra space for the fluid to build up that hadn't been drained out. Then I'll truly be lopsided!

All I have to say is that if my drain isn't out in a week, I may hang myself by the tubing.

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